www.eurowilson.org
UK
King's College Hospital, London
Contacts
Paediatric Hepatology
Pr Anil Dhawan
(00 44) 2032993214
anil.dhawan@kcl.ac.uk
We are one of London's largest and busiest teaching hospitals, with a strong profile of local services primarily serving the boroughs of Lambeth, Southwark and Lewisham. Our specialist services are available to patients across a wider catchment area, providing nationally and internationally recognised work in liver disease and transplantation, neurosciences, haemato-oncology and foetal medicine.
Children's Hospital, Birmingham
Contacts
Liver Unit -Hepatology
Pr Deirdre A Kelly
(00 44) 1213338257
Deirdre.kelly@bch.nhs.uk
Dr Carla Lloyd
CARLA.LLOYD@bch.nhs.uk
The Liver Unit is a national service and is run as an integrated medical and surgical unit, for inpatients and outpatients. The Liver Unit is dedicated to the management of children with liver disease and provides highly specialised care. This includes nutrition, family support and organ transplantation services involving liver, liver and kidney, liver and small bowel and isolated small bowel.
The philosophy of the unit is based on family centred care. The multidisciplinary paediatric team includes paediatricians specialised in hepatology, gastroenterology and nutrition. Surgeons specialised in hepato-biliary and transplant surgery, and a specialised team including liaison nurses, ward nursing team, transplant coordinators, dieticians, physiotherapists, psychologists, social workers, pharmacists and play therapists.
The unit is supported by high quality radiology, histopathology, anaesthetic, intensive care and other paediatric specialists within the Birmingham Children's Hospital.
General Infirmary, Leeds
Contacts
Paediatric Hepatology
Dr Patricia McClean
(00 44) 1133925651
patricia.mcclean@leedsth.nhs.uk
Leeds General Infirmary is a large Adult and Paediatric teaching hospital in central Leeds. All paediatric services are co-located at this site including a supra regional children's liver service. This service provides specialist care to children with all forms of liver disease and includes specialist hepatobiliary surgery and liver transplantation.
Referrals come from all over the North of England, Scotland, Wales and Northern Ireland.
http://www.leedsteachinghospitals.com/
University Hospital, Cambridge
Contacts
Hepatology
Dr William Griffiths
(00 44) 1223586891
bill.griffiths@addenbrookes.nhs.uk
Tertiary liver transplant centrePatient Organisation
Wilson's disease support Group UK
Contacts
Valerie Wheater: If you would like to be put in touch with others WD patients and for information regarding genealogy
val@wilsonsdisease.org.uk
Rupert Purchase
rupertpurchase@wilsonsdisease.org.uk
The Wilson's Disease Support Group UK is an all volunteer organisation which strives to promote the well-being of patients with Wilson's Disease and their families and friends.
The organisation aims to provide informative articles about the nature of the disease, articles written by patients, families and friends about their experiences of the disease, recent progress in treatment and much more, by way of a biannual newsletter.
The organisation also aims to promote networking of WD patients and their families by helping and encouraging them to correspond with each other.
Finally, the organisation strives to generate a wider awareness of Wilson⊃;s Disease and its diagnosis within the medical profession.
What the Wilson's Disease Support Group - UK Does Patient Support:
- Maintains a membership list which includes patients, their families, their friends, and any other individuals and organisations interested in the disease
- Sends an annual newsletter containing information about the disease
- Provides a network for written and phone communication between affected individuals and their families.
Education and Outreach:
- Answers questions from the public about the disease Provides relevant information for professionals to heighten awareness of the disease and to educate people about the disease.
- Offers advice on referral to doctors and resources for patients with Wilson's Disease
- Distributes pamphlets and other information to genetics clinics and other professional groups for distribution to patients and their families
- Promotes public awareness of Wilson's Disease through media coverage
- Co-operates with investigators to advance research into Wilson's Disease
http://www.wilsonsdisease.org.uk/WDSG-P0.asp
Children's Liver Disease Foundation
Contacts
Catherine Arkley (Chief executive of UK patients charity)
UK based national chuildren charity fighting childhood liver diseases through funding research, providing emotional support and information to families, patients, supporting healthcare professionals and providing a clear voice for patients.