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• Latest News

  • Wilson Disease Watch - Vol6 - February 201322/02/2013

    Wilson Disease Watch

    New Edition: February 2013

     

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  • Results of the 2012 Patient Survey03/01/2013

    Results of the 2012 Patient Survey
    

    Questionnaire for WD patients on healthcare needs, specially dedicated to diagnosis and treatment.
    

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  • Wilson Disease Watch July-September 2012 Vol.512/11/2012

    Wilson Disease Watch
    

    New Edition: July-September2012
    

     
    

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  • WD CENTENNIAL SYMPOSIUM-NEWS11/09/2012

    Wilson Disease Centennial Symposium

    London - 5/6th October 2012
    

    
    

    Programme & Registration
    

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  • Wilson Disease Watch-April to June 2012. Vol413/07/2012

     

    Wilson Disease Watch
    

    New Edition: April-June 2012
    

     
    

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  • Diet Advices01/02/2013

    Nutritional Advice Leaflet
    

    Download your Diet Advice Leaflet in your own language
    

     
    

    English Version

    French Version
    

    German Version
    

    Italian Version
    

    Polish Version
    

    Spanish Version
    

    
    

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  • Wilson Disease Watch-January to March 2012.vol 318/04/2012

     

    Wilson Disease Watch
    

    New Edition: January-March 2012
    

     
    

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  • Results of the 2011 Patient Survey14/03/2012

    Results of the 2011 Patient Survey
    

    Questionnaire for WD patients on healthcare needs
    

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  • Rare Disease Day 201224/01/2012

    Rare Disease Day 2012
    

    Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge.
    

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  • Wilson Disease Watch-November 2011.vol 221/11/2011

    Wilson Disease Watch
    

    Abstracts of the European Wilson Disease Congress
    

     
    

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  • European Wilson Disease Congress-November 201111/10/2011

    European Wilson Disease Congress
    

    2011 - November 14/15th - Paris
    

    
    

    
    

    Final Programme
    

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  • Wilson Disease Watch - January-June 2011. vol 109/08/2011

    Wilson Disease Watch

    - New articles : Summary and comments.
    - Minutes of EuroWilson Network meeting 2011
    - Minutes of Patient Representatives Meeting 2011
    - Presentation of Rare Disease Day 2011
    - Agenda
    - Actualities of European Database
    

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  • Rare Disease Day 201128/01/2011

    Rare Disease Day 2011

    Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge.

    
    

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  • EPPOSI Workshop on Registries for Rare Disorders31/08/2009

    EPPOSI Workshop on Registries for Rare Disorders

    Need for data collection to increase knowledge on rare disorders and optimise disease management and care

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  • EuroWilson Publications in preparation10/06/2009

    EuroWilson Publications in preparation

    There are a number of publications, generating from the EuroWilson clinical database, in progress:

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  • EuroWilson10/06/2009

    EuroWilson

    A DG Sanco application for funding a Wilson's disease public health project is on-going: E-Wilson.

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