www.eurowilson.org
Latest News
- New articles : Summary and comments.
- Minutes of EuroWilson Network meeting 2011
- Minutes of Patient Representatives Meeting 2011
- Presentation of Rare Disease Day 2011
- Agenda
- Actualities of European Database
Need for data collection to increase knowledge on rare disorders and optimise disease management and care
There are a number of publications, generating from the EuroWilson clinical database, in progress:
A DG Sanco application for funding a Wilson's disease public health project is on-going: E-Wilson.